End of life care
Death and dying is inevitable and everyone should expect to receive compassionate care which meets their own personal needs at the end of their life. Nationally up to 81 per cent of people say they would prefer to die at home, however the majority of patients in north east London die in hospital with four of our CCGs having the highest rates of hospital deaths, 20% above England average. The programme addresses inequalities in end of life care and is committed to providing care for all, which allows people to die in their preferred place of choice. Our priorities include:
- Improving the identification of people at needing end of life care.
- Ensuring access to appropriate 24/7 services; electronic palliative care record sharing and coordinated systems across all our CCGs.
- Commission an outcomes based service model in order to deliver better outcomes across all providers.
- Focus on sustainable education and training of all professionals and staff who provide end of life care; including developing a framework and tools to help people make well-informed decisions, and have open and honest conversations.
Who we are
The programme group is chaired by Simon Hall (Director of Transformation, East London Health and Care Partnership) and meets every six weeks. The group is brings together a range of different people working in end of life care, including representatives from hospices, hospitals, local authority, CCGs and the community and voluntary sector. A programme manager supports the delivery of the projects and within the programme, five work streams exist each with their own work stream chair who specialising in this area. We're looking for a patient representative to join our group to bring a carers perspective, and share their personal experiences.
Our story so far
The programme was established in 2017, and after a number of large community workshops across north east London a smaller group with stakeholders across all organisations and boroughs was formed.
The group have successfully mapped out the key gaps and priorities of work and have started to make an impact on these and delivery new end of life services.
We've successfully secured funding for the hospice at home model to be delivered in two of our boroughs with plans to roll a similar model across all of north east London. Hospice at home services aim to enable patients with advanced illness to be cared for and die at home if that is their preference. They also support carers and families and work with other healthcare professionals, such as Marie Curie and St Joseph’s Hospice.
Another success has been the development of a screening tool to identify patients who may be within their last years of life. This ensures that patients are identified earlier and both patients and carers can plan for their death and have access to the care that they want. We expect to go live with this project in June 2019.
We are always keen to hear peoples’ views, experiences and thoughts on how end of life services can be improved in North East London. If you would like to be involved in any way, please contact Cathryn Maybin at Cathryn.email@example.com