Quality of Life Patient Survey
Public Health England, NHS England and NHS Improvement are leading the way in cancer care by recognising that quality of life outcomes are as important to patients as survival. They are launching a nationwide Cancer Quality Of Life survey in September 2020. Initially, they will survey people who have been diagnosed with breast, prostate or colorectal cancer. People with all other cancer types will be included from 2021 onwards.
The information collected from the survey will be used to work out how best to support the growing number of people #LivingWithAndBeyondCancer.
This is an ambitious programme with a scale and depth that isn’t being matched anywhere else in the world. To find out more:
Social media: #CancerQualityOfLife #LivingWithAndBeyondCancer #PersonalisedCare
About the Cancer Quality of Life Survey:
If you have been diagnosed with cancer not less than 18 months ago, NHS England & Improvement may write to you, inviting you to take part in a survey so that you can tell us how cancer may have changed your quality of life. This will help us improve the way we support people who have had a cancer diagnosis.
What we would like you to do:
We would like you to tell us how you are feeling by completing the Cancer Quality of Life Survey. 'Quality of life' is about your physical, emotional and social well-being. Your answers could be about your cancer diagnosis and treatment but can also be about any other illnesses and other things happening in your life. The survey will take about 5 to 10 minutes to complete and will ask you questions about your wellbeing.
Why this is important:
We want to see where care is working well or not so well, and if any new services are needed. To do this, we’re comparing how people with an experience of cancer are feeling with information about their cancer diagnosis and treatment.
How you can take part:
Once you receive your letter, the easiest way to take part in the survey is online at www.CQoL.uk. When you receive a letter you will be given a unique login details (username and a password) to access the survey. If you have a QR reader on your phone or tablet, you can access the survey by scanning the code.
If you are unable to access the survey online, you will be given an option to complete the survey on paper. Please, await a letter invitation to be posted to you (likely after December 2020).
How you can get in touch:
If you need help filling in the survey (for example, in another language), have any questions or comments about the survey, or wish to make a complaint, you can get in touch by:
- calling the freephone helpline on 0800 783 1775 (9am to 5pm Monday to Friday)
- sending an email to email@example.com
- visiting the webpage CancerQoL.england.nhs.uk
- writing to: Freepost
Important information you need to know:
Information about your cancer, or condition that may have led to cancer, was recorded in the cancer register at Public Health England. This was shared with them by the NHS team who looked after you. More information about the cancer register is in the leaflet sent with the letter.
You do not have to take part in this survey. Your medical care will continue in the same way whether you choose to take part or not.
This survey is being carried out for us by a company called 'Quality Health'. Your personal information will be kept safe by them, and your answers will be dealt with in confidence. Quality Health will return your answers to Public Health England. In completing the survey, you agree that Public Health England can link your answers with the information they have about you and your cancer in the cancer register.
Your information will be handled securely. Your survey responses will not be seen by any health professionals providing you with care.
If you are worried about your health, or the way you are feeling, please get in touch with your GP or specialist nurse.
You can ask Quality Health to remove your personal information up until the point that they send your answers back to Public Health England. Further information about your rights, and how your information will be used, can be found here: www.CancerQoL.england.nhs.uk
Download slides to help staff who regularly speak with cancer patients in England to understand how the Quality of Life survey differs from other surveys and why it is very important that patients complete the QoL survey if they possibly can.