Sharing Information


In east London we can improve the quality of care you receive by sharing the right information about you between our local NHS and social care organisations who are providing you with your direct care. We call this sharing of information, Data Sharing and the people sharing this data your Direct Care Team. These are the people who will, at some point, be involved directly in your care; be it your GP, or the A&E team when you visit for an emergency, or the social care team looking after you in your home. The sharing of information has always happened (to a lesser degree) with paper processes but systems are allowing us to share more relevant information about you amongst your Direct Care Team. This helps them be more efficient and supports decisions that they and you make about your care. 

This work is being led by your local clinicians who want to make sure you receive the best quality care possible. They want to be as transparent as possible so that you can feel assured that data is being shared with your best interests at heart. They want you to be involved in this as best you see fit. In line with the Data Protection Act 2018 General Data Protection Regulations (GDPR) which came into force in May 2018, and the Health and Social Care Act (2015) we are adopting an implied consent model for sharing data for direct care purposes between the members of your Direct Care Team. To read the Privacy Notice or Fair Processing Notice please see the document "Privacy Notice or Fair Processing" which you can download from this page.

We have three aims to use Digital Technology to support your care. These are:

1: Real time access to patient records

Giving shared access to your records to your direct care team to support the decisions they make in caring for you. The organisations that are currently able to view and share your records at point of care are:

  • Barts Health NHS Trust
  • Homerton University Hospital
  • Barking, Havering and Redbridge University Hospitals NHS Trust
  • East London Foundation Trust
  • North East London Foundation Trust
  • GP Provider Federations
  • General Practices
  • Community Health Services (on their own or through the organisations they are hosted in)
  • City of London Corporation
  • London Borough of Hackney
  • London Borough of Newham
  • London Borough of Tower Hamlets
  • London Borough of Waltham Forest
  • London Borough of Barking & Dagenham
  • London Borough of Havering
  • London Borough of Redbridge
  • St Joseph's Hospice
  • Richard House Hospice
  • St Frances Hospice
  • City and Hackney Urgent Healthcare Social Enterprise
  • PELC (The Partnership of East London Cooperatives)
  • London Ambulance Service
  • Community Pharmacies across North East London

2. Population Health and Analytics

Gathering together your data in one place (under the control of your clinicians) to use it improve the way we deliver your care and plan our future delivery of your services. We are developing a NHS owend system called the Discovery Data Service (DDS) that delivers this functionality for us. The use of data within DDS is strictly controlled and managed by your local providers. You can find a list of all the use cases that have been approved here:

 

https://discoverydataservice.org/Content/Use_cases.htm

3. Personal Health Record

To pull together all of the information held about you across our services into one place that you can view and interact with as never before. This is in development but the start of this journey is the NHS App https://www.nhs.uk/using-the-nhs/nhs-services/the-nhs-app/ which allows you to see elements of your GP record and perform functions like book appointments and order repeat prescriptions

Covid-19 and your information - April 9th 2020

This notice describes how we may use your information to protect you and others during the Covid-19 outbreak. It supplements our main Privacy Notice which is available here.

The health and social care system is facing significant pressures due to the Covid-19 outbreak. Health and care information is essential to deliver care to individuals, to support health and social care services and to protect public health. Information will also be vital in researching, monitoring, tracking and managing the outbreak. In the current emergency it has become even more important to share health and care information across relevant organisations.

Existing law which allows confidential patient information to be used and shared appropriately and lawfully in a public health emergency is being used during this outbreak. Using this law the Secretary of State has required NHS Digital; NHS England and Improvement; Arms Length Bodies (such as Public Health England); local authorities; health organisations and GPs to share confidential patient information to respond to the Covid-19 outbreak. Any information used or shared during the Covid-19 outbreak will be limited to the period of the outbreak unless there is another legal basis to use the data. Further information is available on gov.uk here and some FAQs on this law are available here.

During this period of emergency, opt-outs will not generally apply to the data used to support the Covid-19 outbreak, due to the public interest in sharing information. This includes National Data Opt-outs. However in relation to the Summary Care Record, existing choices will be respected. Where data is used and shared under these laws your right to have personal data erased will also not apply. It may also take us longer to respond to Subject Access requests, Freedom of Information requests and new opt-out requests whilst we focus our efforts on responding to the outbreak.

In order to look after your health and care needs we may share your confidential patient information including health and care records with clinical and non clinical staff in other health and care providers, for example neighbouring GP practices, hospitals and NHS 111. We may also use the details we have to send public health messages to you, either by phone, text or email.

During this period of emergency we may offer you a consultation via telephone or videoconferencing. By accepting the invitation and entering the consultation you are consenting to this. Your personal/confidential patient information will be safeguarded in the same way it would with any other consultation.

We will also be required to share personal/confidential patient information with health and care organisations and other bodies engaged in disease surveillance for the purposes of protecting public health, providing healthcare services to the public and monitoring and managing the outbreak.Further information about how health and care data is being used and shared by other NHS and social care organisations in a variety of ways to support the Covid-19 response is here.

NHS England and Improvement and NHSX have developed a single, secure store to gather data from across the health and care system to inform the Covid-19 response. This includes data already collected by NHS England, NHS Improvement, Public Health England and NHS Digital. New data will include 999 call data, data about hospital occupancy and A&E capacity data as well as data provided by patients themselves. All the data held in the platform is subject to strict controls that meet the requirements of data protection legislation..

In such circumstances where you tell us you’re experiencing Covid-19 symptoms we may need to collect specific health data about you. Where we need to do so, we will not collect more information than we require and we will ensure that any information collected is treated with the appropriate safeguards. We may amend this privacy notice at any time so please review it frequently. The date at the top of this page will be amended each time this notice is updated.


Updated: 03/07/2020